Teenager with rare kidney disease inspires Romford business to raise awareness for charity
PUBLISHED: 17:03 02 July 2018
A Romford business was inspired to raise awareness about a kidney care support charity after the daughter of one of its workers was diagnosed with a rare and incurable kidney disease.
Auto Windscreens in Ashton Road has launched four special Kidney Care UK branded vans in Romford.
Paul Garforth and his wife, Tracy found out in September 2016 that their 14-year-old daughter, Emily had a severe condition called C3 glomerulonephritis (C3GN).
Emily’s symptoms went unnoticed for months, but she is now undergoing drug trials at Great Ormond Street Hospital and is part of the 100,000 Genomes project which focuses on rare diseases.
Paul said: “We don’t know what the future holds for Emily and it’s been an incredibly tough few months for us all.
“Both Kidney Care UK and Auto Windscreens have been great, helping us where possible.”
Paul’s van now features the cause, along with three other vehicles operated by the UK windscreen repair and replacement company.
Emily is a keen show jumper and has so far managed to continue this despite being very poorly.
Her father describes her as a bright 14-year-old who has a great sense of humour and is doing well at school.
“It is fantastic that my colleagues and I are able to promote the charity while at work and using our vans,” said Paul.
“It’s good to be able to give something back to them.
Kidney Care UK provides a range of services to individuals and their families.
They have been vital in supporting the Garforth family by offering counselling and putting them in touch with others dealing with similar conditions.
Robert Hope, head of fundraising at Kidney Care UK, added: “We’re pleased that we’ve been able to help Emily, Tracy and Paul and grateful to the support of Auto Windscreens for helping raise awareness of our work as a charity.
“Sadly many people just don’t think about their kidneys until something goes wrong so this is a great opportunity to raise awareness of kidney disease and rare diseases like Emily’s; and ultimately help people understand more about how to keep their kidneys healthy.”