Hornchurch shows strength of community at MuscleUp for Lucas event

PUBLISHED: 14:32 02 November 2016

Nicci, left, with her two children and Katy with Lucas and his younger sister Sophie

Nicci, left, with her two children and Katy with Lucas and his younger sister Sophie

MuscleUp for Lucas

The family of a little boy who suffers from a terminal disease had an extra special Halloween treat as the community came together to host a charity fundraiser for their son.

Lucas WhiteLucas White

Nicci Wilson-Kivlehan, from Hornchurch, organised the event for four-year-old Lucas White after he was diagnosed with Duchenne Muscular Dystrophy, a muscle-wasting and life-limiting disease, in July this year.

Nicci, who works for Havering Sing and Sign, conducted a Halloween themed sing and sign session for children and families followed by a raffle, lucky dip and best costume competition.

More than a hundred people attended the event, held inside St Mary’s School Hall, in Hornchurch Road, and raised £641.31 for the MuscleUp for Lucas campaign, set up by Lucas’s mum, Katy.

“I cannot begin to express my gratitude to Nicci and everybody involved with this event for dedicating it to my precious little boy,” said Katy.

“Knowing there are so many caring and very generous people around makes me very humble. As he grows up, Lucas will always know that he touched the hearts of so many.”

Lucas’s condition affects one in 3,600 boys and gradually robs children of the ability to walk or move unaided by the age of 10.

After learning of their sons debilitating condition Lucas’s parents set up a just giving page to increase awareness of the disease and to raise funds to secure the cost of Lucas’s medical needs.

To learn more about Lucas and his story go to the MuscleUp for Lucas Facebook page or visit

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