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Hornchurch mum says son denied a ‘fair chance of life’ after NHS funding snub

PUBLISHED: 12:00 01 February 2015

Natalie's son Oliver was diagnosed with severe Plagiocephaly and Brachycephaly (known as flat head syndrome) - this is distortion of the skull with causes his head to be an irregular shape.  The condition can be rectified with a custom made helmet which would re-correct the problem but the NHS does not fund this treatment  Natalie Allen with Oliver age six months.

Natalie's son Oliver was diagnosed with severe Plagiocephaly and Brachycephaly (known as flat head syndrome) - this is distortion of the skull with causes his head to be an irregular shape. The condition can be rectified with a custom made helmet which would re-correct the problem but the NHS does not fund this treatment Natalie Allen with Oliver age six months.

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A mum-of-one is “disgusted” that treatment for her son’s condition is not funded by the NHS as it is deemed as a “cosmetic” process.

Natalie Allen, 23, of Sunrise Avenue, Hornchurch, whose son suffers with plagiocephaly and brachycephaly – also known as flathead syndrome – was in disbelief when she was told she would have to pay almost £2,000 to rectify her 24-month-old son’s condition.

She said: “It’s awful that he’s being turned down for the helmet.

“I’m disgusted that my little boy is not being given a fair chance in life when people like Josie Cunningham has been given a boob job for nothing – it just isn’t fair.”

Natalie’s son Oliver was born with the condition which means he has a distortion of the skull and his head is disproportionately wide compared to its depth.

The defect can be resolved with a custom-made helmet but Natalie would have to purchase it herself as she was told by doctors that it is not funded by the NHS as it is seen as a “cosmetic” procedure rather than a life-changing necessity.

Natalie said: “We’ve been told that we cannot have the helmet and several doctors have even said that his hair will cover his head so he will be fine but that just isn’t the case.

“It is very frustrating to think we are not receiving any help, especially when it can be easily amended.”

But Natalie has remained determined to help her son and has managed to raise about £2,700 through donations made by friends and family as well as those donating on her justgiving page.

She said: “I felt quite emotional knowing that all of these people had decided to give their money for Oliver so I would like to thank everyone who helped.

“We’ve received even more money than we needed so we will distribute that to other children who need this helmet.”


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