Harold Hill parents hope to raise £30,000 for daughter’s operation
PUBLISHED: 13:34 13 January 2016 | UPDATED: 13:34 13 January 2016
The parents of a youngster with cerebral palsy are appealing for help in raising £30,000 for an operation which could change her life.
Russell and Susan Triggs have launched a fundraising drive to pay for a selective dorsal rhizotomy (SDR) for their daughter Amber Lilly, eight, a procedure to alleviate the stiffness in her muscles, which could potentially lead to her walking independently.
As of March, the NHS will no longer fund SDR.
Russell, 48, said: “We want to make sure Amber has the best opportunities and helping her to walk will do this.
“Doctors are surprised that she is not just lying there, because she has got so many different illnesses that have an impact on her health.
“It would be amazing if we could get people’s support.”
Amber Lilly was born three months prematurely – with “significant disabilities” – along with her twin sister Ellie, who sadly died shortly after birth.
Amber’s disabilities have affected her vision, hearing and teeth and she requires round-the-clock care, moving about with the aid of either a wheelchair or walking frame.
Russell said: “When she’s at home she completely relies on us as her parents, but our number one priority is to help her eventually live a more independent life. Her muscles are very stiff and cause her a lot of pain, so to be able to relieve that would be amazing.”
The family hope to raise enough money to cover both the operation, at Great Ormond Street Hospital, and the aftercare needed.
Russell added: “This is the quality of a little girl’s life that we’re dealing with and I can’t believe we’re having to do this pretty much by ourselves, but I do hope people will help us in reaching our aim of £30,000.”
To donate, visit gofundme.com/mfn5akgc.
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