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Celebrities to play in Hornchurch charity football match for cystic fibrosis sufferer

PUBLISHED: 15:11 06 January 2015 | UPDATED: 16:14 06 January 2015

Channan now has a wheelchair because she gets too tired to walk

Channan now has a wheelchair because she gets too tired to walk

Archant

Celebrities have teamed up to help an inspirational 22-year-old raise awareness of the disease that is killing her.

Channan PetridesChannan Petrides

Cystic fibrosis sufferer Channan Petrides has been told by doctors she has 12-18 months to live and has drawn up a bucket list of things she wants to achieve in that time.

Top of that list is raising the profile of the incurable condition, and her regular health updates have gone viral on social media.

Her story has caught the attention of a host of celebrities, who will take part in a charity football match at AFC Hornchurch in March for the CF Trust.

“The response was such a shock,” Channan, of Grays, told the Recorder. “I didn’t expect it to go so big. It’s very overwhelming.”

Channan’s Bucket List

Not ticked off:

Drive-in movie theatre

Meet Ed Sheeran

Meet a penguin

Disneyland Paris

Meet One Direction

Go on tv and make CF awareness viral

Harry Potter studio

Madame Tussauds

Micky Flanagan show and meet him

London Eye

Science Museum

Ticked off:

Ed Sheeran concert July 11

Spa weekend

Big party (April 11)

The zoo (Feed a lion)

Hot air balloon ride

Raise money for CF Trust

Go viral

West Ham game

Meet Mark Noble

Cystic fibrosis is a genetic condition causing the lungs and digestive system to become clogged with thick sticky mucus.

Medical advances can see patients live to their 40s, but at 22, Channan’s lungs are “showing signs of giving up”.

She has a wheelchair because she gets too tired to walk and “practically lives” at the London Chest Hospital.

“Simple things like washing my hair make me very breathless and tired, but help from my friends and family always gets me through,” she said.

Her bucket list includes a trip to Disneyland Paris, appearing on TV and meeting One Direction, but what she wants most is to help other sufferers feel comfortable talking about it.

“As I know from growing up and from CF friends, we try to hide it as it’s not recognised,” said Channan, who has two sisters, her twin Courtny and Lois, two.

“On the outside it is very much invisible but on the inside, it’s a slow killer. Hopefully from raising awareness it leads to a cure.”

The match has been organised by friend Darren Manning through his celebrity contacts. His team Herongate Athletic will take on a celebrity/ex-professional XI featuring Ricky Rayment and Frank Major from Towie, TV star Jack Tweed, model Sam Reece Eckhardt, Big Brother’s Winston Showan, Ross Worswick from Ex on the Beach and ex-West Ham player Kenny Brown.

More stars are also in talks to play.

Tickets for the Sunday March 29 match are £5 and can be bought at ticketsellers.co.uk, the AFC Hornchurch clubhouse, Vanity Beauty Salon in Grays and Shimmer Hair Studio in Hornchurch Road, Hornchurch.


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